The thing about hair…
This morning I showered and got ready for my day just like normal. This includes most of my normal routines because it makes me feel less like a sick person. The oncology fellow came in and laughed at me for unplugging my IV to plug in my flat iron. I had several morning visitors so I wanted to do my hair. We talked a bit about the hair loss. It will definitely be falling out in 14 days but could start as soon as 7 days. I’ve been thinking some about cranial prosthesis (wigs) and considering the length of my chemo treatment schedule (2 years 4 months) I’m going to need several options. Xander has specifically requested not to see mom with a bald head. I really like my hair and it makes me sad to lose it so I’ve been looking at a company in Florida Hats with Hair who will turn your hair into a wig like thing that doesn’t have hair on top and you wear it under a hat or scarf. I could get cheaper underhair but there is something comforting to be able to use my own hair. My amazing friend Jon practiced tying a scarf with me last night and he’s come up with a plan to do the side tie scarf and giant earrings thing.
It was suggested that I start an account for a wig fund and as annoying as I find ebegging to be I thought I could make it available for those who have asked what they can do or what I need. I will be using my PayPal account firstname.lastname@example.org for my wig fund.
In other news the, and I probably should have mentioned this before whining about my hair, chemo is already working. One obvious side effect was that I now piss red acid. Xander thinks this is awesome and has compared me to his acid breathing black dragon. Speaking of pee, since I’m crazy bloated I was given meds in my IV that made me lose 3 lbs in an hour via my urinary tract. Weird. I was also tired today and spent more time in bed than I have been. I am afraid because I know it will get much worse.
Besides the side effects at less than 24 hours post chemo my enlarged lymph nodes were already reducing in size and my white blood cell count dropped significantly. So much so that they considered redrawing and testing again. We just took it as a good sign. Good news is hard to come by so we are happy.
Victoria took me for a walk outside this evening. I needed to stop and rest but we made it to the statue. Our long term goal is to be able to walk to the bar on Neil Ave. if we have to we are taking a wheel chair.
No makeup, tired eyes but hair done!